Monday 23 January 2012

New Phone

Everyone,
Ok, lots to tell you and little time to do it, so this will be short and sweet.
First of all as you all know, Friday morning I washed my damn Blackberry with my dishes. It was a company cell phone and I’m not sure when they will replace it since I am on disability, so I bought a new one today. My new number is 306-203-6648 and PIN is 281B4522. Please add me at your leisure.
Tim and Nance were both in this weekend and we had a blast.  She and I spent most of our time on the sofa reliving our old JOI days while Tim waited on us hand and foot.  She also lent her expertise at Pink Tree – she helped me (FINALLY) pick a wig and commit to it...as well as a few sexy new bandanas. I will look like a rock star thanks to you, Spanks. I tried them on for Tim on Skype tonight and he instantly went into a (really questionable) rendition of Sweet Child of Mine! Most of you are rolling your eyes right now, but I love it!
I am getting ready for Chemo #2 tomorrow and in preparation had to go in for some blood work today. Unfortunately my hemoglobin is extremely low again, lower than it’s been since before my surgery.  (Certainly makes sense considering my lack of energy and recent bouts of breathlessness.) This you can imagine is a little frustrating for me since I discussed this very thing with my oncologist in the middle of December, requesting at the suggestion of my surgeon to have a blood transfusion. I was denied, told he would consult a hemotologist and get back to me. I heard nothing and today, was asked by my oncology nurse why I haven’t been taking iron supplements in the interim. Hmmm....I don’t know? Maybe because there was no clear direction to do so??? SO, long story short, I will still have my regularly scheduled chemo treatment tomorrow, but it will be followed by 4 hours of blood transfusions at RUH on Wednesday. Awesome.  Insert sarcasm here.
So Kristie and Marlys are on Chemo duty this time and then my dad is coming in tomorrow afternoon to take over for the week.  I am hoping beyond hope that Chemo Day is as pleasant this time as the last. Please know that I will be thinking of all of you and channelling your positive vibes.  Feel free to text or BBM – my most recent contact list went down the drain on Friday and I fear I have lost some of you.
Love and hugs,
Barbie

Monday 16 January 2012

CHEMO Wins Round #1

Wow, what a week. It has been one helluva week. This is the first time that I have been able to get up the gumption to make contact.  To those of you who have contacted me with A) no response or B) a bitchy one, please forgive me. I am JUST starting to get back to myself now.
First of all, a cute little shot of me on Chemo Day:



Hmmm....notice the nice, warm blanket from Kristie and Scott, the jaunty little hat from Mona and Bob, the fuzzy slippers from Bob and Linda? How cute.  The one thing I should point out that isn’t immediately obvious in this photo is my complete and utter lack of understanding as to what was REALLY about to happen. Sweet Jesus, it’s amazing what a chipper nurse and a sublingual Ativan can do to turn Chemo day into a picnic with friends. The drugs made everything fly by (for me anyway).  We got there about 11:30 am and as you can see I had my own personal suite where a cavalcade of nurses, pharmacists and nutritionists pumped me full of several different types of chemotherapy, anti-nausea drugs (Thank you Spanks, Darin Anderson and Merck in general) and information about what to eat over the next few days. We were there until after 4 pm, as I am on several different drugs that need to be infused at separate times for several hours each, then near the end they attached a bottle of 5-FU to my PICC line that would stay in place for the next 46 hours. And by bottle, I mean it looks like a baby bottle with a huge condom resting inside – full of medication that slowly deflates as it enters my system.  The idea being lower side effects and the ability to go home with it as opposed to staying over. Two things – not sexy at all and there’s a damn condom rolling around a bottle around your neck! Makes a girl the butt of a few jokes, I can tell you.  Bring it on Joe, Billy, Michelle and Dean....I’ve heard ‘em all already.
Tim, Kristie and Marly all took really good care of me while @ the canser clinic...and it was shockingly stress-free. And then BAM – reality set in on Day 2.  Without going into any great detail, I can honestly say that I have some of the best and most supportive friends and family around to have put up with me, specifically on Day 4 and Day 5 of my FolFox treatment.  My dad and Tim truly are the most patient men on the planet to put up with me and my moods, Spanks did a great job of keeping my spirits up when I refused to do it myself and Mar and Telly have been so great about helping me eat and do stuff around the house.  I have to say that I really had no idea that this would be so hard mentally and physically, but now that I know what to expect, I plan to be better prepared next time. That’s right – MORE DRUGS. Nancy is of the belief that one should go through chemotherapy stoned and I am a 100% convert to her way if thinking.  Seems like just plain good sense to me.
So that’s it for now. I think today (Day 6) was the TSN Turning Point and I am hoping for an easier week now, allowing me time to recover for the next round. Better head to bed, I think the sleeping pills are kicking in!
Please take good care of yourselves my friends,
Bring it ON!

Sunday 8 January 2012

And so it begins...

Members of Team James,
Wow, I guess it’s been awhile since I sent out an update. It has been a very, very busy few weeks and I am at a bit of a loss as to where to start. Hmm, at the beginning I guess....
The holiday season was lovely, surprisingly lovely considering the circumstances. I wasn’t yet up for travelling so I stayed in Saskatoon, spending most of Christmas with Chantelle and her family. As always, it was a pleasure to be included in the Morrison/Reiber/Shields Christmas celebration.  Tim came to town on Boxing Day and stayed until New Year’s day – we had a fantastic week, topped off by a lovely New Year’s Eve with Chantelle, Kelly, Lance and Marlys. Every day found my voice mail and cell phone full of merry wishes and positive vibes.  Every mail delivery day found my mailbox overflowing with letters, cards, gifts, monkeys (that’s right, I said monkeys!), hats and gift certificates.  I have no words to express my appreciation. You guys ROCK! I did manage to get about 80% of my Christmas cards sent, thanks to my Dad and our own little assembly line. The 20% of you who have yet to receive your Christmas Cards can expect some lovely holiday-themed “Congratulations it’s January and Not 150 Degrees Below Zero Outside!” cards very soon....
I also started taking the Low Dose Naltrexone on New Year’s night (A HUGE Thank-You to Michelle and Tim for ALL your work on this for me) – I thought it was a great and very symbolic day to start what I am affectionately referring to as “my progression to remission”.  It took some problem solving to get a script for this medication in Saskatchewan – I actually had to do a Skype consultation with a doctor from New York and have my family doc sign off on it.  The dispensing pharmacist was incredibly positive about LDN and it’s potential to treat a variety of different diseases, including canser. (Purposely misspelled – just my own little bit of rebellion – not giving it anymore respect than it deserves.)
The past week has been spent going to many medical appointments, a two-day visit from my sister and niece and some spa pampering.  I finished my last IV Vitamin C infusion this past week, visited my chiropractor for some help with some relentless and very nasty residual back pain, and had an informative and very positive appointment with my surgeon.  First of all, he gave me the green light to drive again, so I am no longer trapped in my house! Wahoo – FREEDOM!  He also instructed me to get back to the gym and enjoy the occasional glass of wine, should I so choose. Funny, I was under the impression that since he cut out a good portion of my liver, that avoiding alcohol was a bit of a necessity – but turns out I was wrong.  Hmm, who knew? THAT would have been a handy little nugget of knowledge on New Year’s Eve, drinking Raspberry Cider while coveting the champagne that made it’s way around the Cory dinner table.  Ah well, there’s always next year!
This week has been challenging aside from me and my health.  My family lost one of it’s most beloved and revered members on Thursday evening, my Auntie Leona. She was an amazing woman, who left an incredible legacy in the form of a very large and loving family.  I am incredibly grateful that my chemo schedule will allow me to attend the celebration of her life tomorrow.
Which brings me to....CHEMOTHERAPY week.  Yikes. I would be lying if I said that I’m not a little anxious about this whole process, but luckily I have had some incredible advice and support from some of my gals (Nancy, Barb, Diane, Heather and Anne) who have and are kicking canser’s proverbial posterior. And let me just say that I couldn’t find a group of stronger broads with whom to align myself on this journey.  SO, Monday morning Dad and I will head up to Prince Albert to attend the funeral – getting back to the city by 2:30 to pick up Tim from the airport.  Monday night is date night, so if you need me you could find us fattening me up at the Granary and watching a mindless movie @ Galaxy.  So good and so normal.
Tuesday morning will be filled with an early morning chiropractor appointment, a physiotherapy appointment and a long leisurely afternoon at the canser clinic with Tim and Kristie, being infused with a chemo cocktail designed  to nuke the little trouble-makers who seem to enjoy squatting and reproducing in my liver. Being my first treatment, I will get a private room – which is lucky b/c I’ve noticed that one of the side effects of my canser is a complete and utter lack of interest in filtering my language.  It would seem that I swear like a trucker these days and wouldn’t want to offend my new peeps on the first day.  Hmmm, not very lady-like, but I don’t really give a damn. Winking smile  Unfortunately Chantelle is away at meetings the day of my treatment, so she is planning to participate via electronic chat (not easy for a self-proclaimed control freak) and I am planning on taking my camera to record the day’s festivities for posterity.  Although my chemo plan is pretty aggressive and I am confident it will be effective, side effects are very much an unknown at this point.  The research I have done indicates that comparatively speaking, my cocktail is a relatively mild program with respect to side effects, but everyone reacts differently and all I can do is hope that any side effects that do present themselves are manageable. 
So, here we go with Phase II of my mission.  Thank you all for your continued interest and support – everyone of you has at one point or another given me another reason the beat this thing. 
Bring it ON!
Barb